iCMLf Knowledge Centre

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CML in Children and Young Adults


In general, acute leukemias are more prevalent in children and are therefore often referred to as "childhood leukemias". The chronic forms of leukemias, including CML, are seen much more frequently in adults.

CML in children is considered an ultra-rare condition. The exact incidence is unknown, but estimates range from around 15 new cases per year in UK and 100 new cases in the USA. It accounts for less than 3% of all childhood leukemias and less than 10% of all CML cases. The incidence is suspected to be higher in developing countries, with The Max Foundation reporting more than 2,000 pediatric CML patients in their database.

Scientific News

Recommendations for the management of CML in children

In 2014, a group of renowned pediatric CML experts published treatment recommendations on behalf of the International BFM Group (iBFM) Study Group Chronic Myeloid Leukaemia Committee. The recommendations apply specifically to young CML patients and were published in the British Journal of Haematology. 

You can read a short Summary of the publication here

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Follow latest advances in pediatric CML

If you are interested in reading more scientific news on CML we encourage you to visit the Junior CML Advocates section on the CML Advocates Network Website. There you will find information about CML in children, news on pediatric CML, links to publications on pediatric CML and testimonial stories. 

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Important Links

We would also like to inform you about other links that might be of interest.

Find links to other organizations

The CML Advocates Network provides links to organizations supporting children with CML and their parents.
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A foundation for children with leukemia

LÖSEV is a non-profit NGO, mainly aiming to provide educational and emotional support, financial assistance and health services for children who have leukemia, or chronic blood disorders, in order to help them cope with a life-threatening illness. Other goals are to promote knowledge and provide instruction on an international level regarding acquired and inherited blood diseases, as well as establish and operate research institutions.

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Patient Stories

Share stories from pediatric CML patients

On the ‘Junior CML section’ of the CML Advocates website you will find a selection testimonial stories from pediatric CML patients and/or their relatives. Authentic patient experiences provide insights that are a valuable resource to other patients and their relatives. Please share your stories and let others know that they are not alone!

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Chat with young adults living with CML

The Leukemia and Lymphoma Society hosts a chat that provides a forum for young adult patients (ages 18-39) to address the stresses and triumphs shared by those living with survivorship issues. This chat is open to discuss any issue related to living with leukemia, lymphoma or myeloma: a new diagnosis, treatment decisions, clinical trials, treatment side effects, relapse, emotional toll, interpersonal relationships, fatigue, living with uncertainty and other survivorship issues.

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