iCMLf Knowledge Centre

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Medication

 

As a patient, it is important to learn about all of the therapeutic options available to you in order to ask your doctor the right questions. Proper use of medication can be crucial for the success of your treatment. Therefore, we want to provide you with an overview on many important aspects of CML treatment such as the available drugs, adherence and management of side effects. 

Get an overview of therapies for CML

You will find an overview of drugs for frontline therapy in CML and therapies for resistant disease following failure of tyrosine kinase inhibitor (TKI) therapy. 
Logo National CML Society

Patient Support programs

There are many different patient support programs assisting patients on their treatment path through information, support tools and financial aid. 

Patient Assistance Programs have emerged in an effort to help patients who lack health insurance or prescription drug coverage obtain the medications they need. These programs are typically offered by pharmaceutical companies to provide free or low cost prescription drugs to qualifying individuals. On this page we have put together the most important Patient Assistance Programs for CML.

Overview of Patient Assistance Programs for CML

On the website of the National CML Society you will find a list of important Patient Assistance Programs for CML. The organisation also provides assistance to patients and family memeber with the application process for a variety of Patient Assistance Programs. 

Logo National CML Society 

Learn more about the CML Life programme

'CML Life' is a patient support programme for people with CML supported by the pharmaceutical company Incyte. The program is also available as an app. 'CML Life' has a range of features, designed to help to improve the lives of everyone affected by CML, including: 

  • Patient knowledge centre, to help increase your ability to manage CML
  • Mindfulness modules, to help with relaxation and anxiety reduction
  • Health tracker, to help track progress over time
  • Appointment guide, tips and guidance about what to discuss with your healthcare professional
CML life 

Learn more about the Patient Assistance NOW program

Patient Assistance NOW is a US based website run by the pharmaceutical company Novartis designed to help you find programs that may provide savings or resources, as well as access to Novartis prescription medications.

Novartis 

Learn more about the Pfizer Oncology Together Program

The patient services offered by the pharmaceutical company Pfizer include:

  • Specialty pharmacy personel available 24/7
  • Dedicated care champions that guide you with ressources for managing your day-to-day life, including nutrition information, help getting to/from appointments and connecting with support groups
  • Assistance with the cost of treatment, including help with co-pay support and financial assistance programs

The product information provided in this site is intended only for residents of the United States. 

Pfizer Oncology Together

Learn more about the BMS Access Support

The BMS Access Support program, run by the pharmaceutical company Bristol-Myers Squibb provides resources to help patients understand their insurance coverage and find information on sources of financial support, including co-pay assistance for eligible commercially-insured patients. This site is intended for U.S. residents 18 years or over

 BMS Access Support

 

Side Effects

All medicaiton can have side effects and these side effects can affect each person differently. Knowing about the potential side effects from your CML treatment will help you to discuss these with your doctor and to learn how to manage them.

Watch a video on side effects of CML treatment

This educational video on side effects tells you all you need to know about side effects and how to manage them.

Logo CML Advocates Network

Read recommendations for dealing with side effects

On the website of the National CML Society you will find recommendations for dealing with side effects as well as links to information on side effects as reported for each of the major therapy options for CML. 
Logo National CML Society

Adherence

As in other chronic diseases, non-adherence to treatment is a well-known problem in CML. Taking medication exactly as prescribed is not always easy for patients with CML, but it is important. Adherence, or taking your medication as prescribed by your doctor has a big impact on the effectiveness of your treatment.

Watch an educational video on adherence to CML therapy

This video on adherence provided by CML Advocates Network explains everything you need to know about adherence to therapy.


Get the CML Adherence App 'CML Today'

This app helps support adherence to therapy with tyrosine kinase inhibitors (TKI's) and to track PCR results. The mobile app is available for free in English, French, Spanish, German, Portuguese, Arabic and Hebrow for use on iOS and Android devices. The app supports you to:
  • Remind you to take your prescribed CML medication
  • Track your PCR test results and other laboratory parameters
  • Connect with local support groups in your own language

Find the 'CML Today' app in the Apple App Store

Logo CML Advocates Network 

Learn more about adherence to CML therapy from a survey

If you want to learn more about the importance of adherence to therapy in CML you may also want to check for the results of the CML Advocates Network Adherence Survey. The CML Advocates Network has conducted a large international study with 2,546 patients from 79 countries in 12 languages. It aimed to investigate motivations and behavioural patterns of adherence in CML, and subsequently support hematologists and patients to improve adherence and develop adherence tools.

 

Generics

A generic drug is a pharmaceutical drug that is equivalent to a brand-name product in dosage, strength, route of administration, quality, performance, and intended use. In most cases, generic products become available after the patent protections afforded to a drug's original developer expire. With imatinib's patent expiring in many countries over a period from 2013 and 2019 generic versions are becoming available for CML treatment in more and more countries. 

Generic drugs can help to increase the availability of affordable medicines and contain health care costs, especially in those countries with limited resources like the emerging markets. However, there are concerns over the impact on quality and safety of CML treatment if products are switched for non-medical reason.

Learn more about CML generics

If you want to learn more about generic drugs for CML we recommend to you the ‘Resource and knowledge Center on CML generics, copy drugs and substandard drugs’ run by the CML Advocates Network.

Logo CML Advocates Network