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It's difficult for you to hear that you or one of your family members have been diagnosed with CML. You will have many questions – and will be looking for answers. You may feel like you’re alone with your diagnosis, but there are many other people in all parts of the world coping with the disease.

There are several opportunities how you can get involved with other patients sharing your experiences and learning from other perspectives. You can watch videos with other people talking about their personal journey of living with CML or you can get in touch with other patients by sharing your experiences in one of the discussion forums for patients available. 

Patient Stories

Logo CML Advocates Network

Read ‘Face of courage and hope’ book with 16 CML stories

CML Advocates Network published an international CML ‘Faces of courage and hope’ book that illustrates the lives of 16 CML patients from 15 different countries. These inspiring stories bring to life the emotional impact of CML on patients and their family and friends and share their hopes and plans for the future. Selected patient stories are also available as a video.

 

Logo Leukemia Care
Read inspirational stories of the experiences with CML

Leukemia Care published a selection of inspirational stories that are persons accounts of the experiences of patients, carers and fundraisers. They all have a story to tell about their experiences with a blood cancer – among them several CML stories.

 

Logo National CML Society
Watch other people living with CML

The National CML Society has a video library that contains a variety of resources. Videos include survivor testimonial stories – all struggling to find the right answers to living life with CML.

 

Logo PatientPower
Listen to Dan Sloan striking on a good balance with CML

Dan Sloan, an avid runner, was 42 years old when diagnosed with chronic myeloid leukemia in 2011. After successful treatment, he has gone from being barely able to finish a run to active participation in 5k and 10k races.

Blogs

There are several blogs and discussion forum’s available on the web where patients can connect with other patients, sharing their experiences and discussing about important issues and the challenges of living with CML. We would like to introduce the following to you: 

 

Logo CML Support Group UK
Access CML Support Group UK Forum

Recent posts on the CML Support Group UK Forum include; recently diagnosed with CML, atypical CML, test results, children with CML and CML and pregnancy.

 

 

Leukemia & Lymphoma SocietyAccess the Leukemia & Lymphoma Society Blood Cancer Discussion Board

Recent posts on the CML Discussion Board include; TKI resistance, 9 month PCR results, CML PH+ blast crisis, what we currently know about TKI discontinuation and journey to TKI cessation. 

 

Logo Leukemia CareAccess Leukaemia Care Blog

Take also a moment to catch up with the latest blog posts from Leukaemia Care, patients and care givers.