Welcome to the Website of the
International Chronic Myeloid Leukemia Foundation (iCMLf)
What is the iCMLf?
It is a Foundation established by a group of hematologists with a strong interest in CML.
Our mission is to improve the outcomes for patients with CML globally. We are currently registered as a charitable foundation in England and Wales but our charter is global. Read more here. |
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iCMLf website: A global community for CML researchers, clinicians and carers
 "How did we ever do this before we had the Internet?” springs to mind when looking at international networks like the iCMLf, the European Leukemia Net or the CML Advocates Network. The Internet has become indispensable to share knowledge, collaborate and communicate globally. Despite CML being a rare disease, experts on all continents collaborate very closely to improve CML treatment. This worldwide community of hematologists is a perfect example for the Internet era. The iCMLf website aims to strengthen that community collaboration further.
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Last Updated on Friday, 30 July 2010 09:03 |
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Chronic Myeloid Leukemia - a perspective from India
 Dr. Hemant Malhotra is presently Professor of Medicine at the SMS Medical College Hospital & Head of the division of Medical Oncology at the Birla Cancer Center. The SMS Medical College Hospital is a 2000 bedded hospital, one of the leading teaching and patient care center in North India.
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Last Updated on Friday, 30 July 2010 08:23 |
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ASH 2009 Recollection: a patient perspective
 "Actually, why do I always spend the St Nicholas holiday in the US, instead of with my family", I asked myself when I boarded the plane to the USA on 4 Dec 2009, in anticipation of a long 16 hour trip to the USA, hiding for days in the dungeons of a large convention center. However, from a patient perspective, it was again worth it. Year by year, more than 20.000 hematologists and healthcare people attend the annual meeting of the American Society of Hematology. All top experts from the CML space are presenting their research here, competing for the hottest piece of news from clinical trials.
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Last Updated on Friday, 30 July 2010 08:56 |
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Newsletter No.2 (April 2010)
The iCMLf has published its 2nd newsletter. It covers an update on the Emerging Regions Support and Partnership programme, on CML response monitoring, a CML perspective from India, a patient perspective from ASH, and an overview of the capabilities of the iCMLf website.>> Download the PDF file here
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Last Updated on Friday, 23 April 2010 08:59 |
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Chronic Myeloid Leukemia: Reversing the Chronic Phase
 Despite considerable scepticism about any possible clinical value of tyrosine kinase inhibitors (TKIs) in the early 1990s, imatinib at an oral dose of 400mg daily has now become standard initial treatment for all CML patients who present in Chronic Phase (CP). After 8 years follow up, the estimated survival for patients treated with imatinib is 85%, which is substantially better than patients treated with interferon alone or interferon plus cytarabine. The adverse effects of imatinib are definitely manageable in most instances.
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Last Updated on Friday, 30 July 2010 08:31 |
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 Diagnosis and Monitoring Response in CML: New Challenge for the iCMLf
During the ASH meeting in 2009 John Goldman and I had the opportunity to meet with Pat Garcia-Gonzalez and Erin Schwartz from the Max Foundation to talk about our common interests. One of the issues that they raised was the lack of diagnostic and monitoring services for CML patients throughout many of the less developed nations.
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Last Updated on Friday, 30 July 2010 08:24 |
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Emerging Regions Support and Partnership (ERSAP) Preceptorship Program started
 Launched in December 2009 the Emerging Regions Support and Partnership (ERSAP) Preceptorship Program is a unique opportunity for clinicians from developing countries who treat Chronic Myeloid Leukemia (CML) to undertake an intensive educational program to develop and expand their CML management skills. Hematologists from Argentina, India and Madagascar now undertake the first preceptorships supported by the iCMLf.
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Last Updated on Friday, 30 July 2010 09:07 |
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Patient Groups: Spread the News
Patient groups are uniquely placed to challenge fears and misperceptions that hamper prevention and contribute to late diagnoses, poor treatment and the social isolation of patients. Acting locally but using the Internet they are now campaigning globally. A recent article in "Cancerworld" also features the activities of The Max Foundation. See the article here. |
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Last Updated on Tuesday, 27 April 2010 06:23 |
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