Privacy Policy

Effective Date: 1st April 2026

The International Chronic Myeloid Leukemia Foundation (iCMLf) is committed to protecting your privacy and ensuring your personal information is handled responsibly. This policy explains how we collect, use, and protect your data in compliance with applicable data protection laws, including the UK General Data Protection Regulation (UK GDPR).

Who We Are

The iCMLf is a registered charity (no. 1132984 in England and Wales), dedicated to improving outcomes for people affected by Chronic Myeloid Leukemia (CML).

The International CML Foundation is the data controller responsible for your personal data.

Registered Address: 20 Eversley Road, Bexhill-on-Sea, East Sussex, TN40 1HE, UK

Email: info@cml-foundation.org

Information We Collect

We may collect and process the following personal data:

  • Contact Information: Name, email address, phone number, and mailing address.
  • Professional Information: Job title, organisation.
  • Event Participation: Details related to your registration and attendance at iCMLf events or webinars.
  • Website Usage: Technical data like IP addresses, browser types, and cookies.
  • Interaction Data: Information about how you interact with our emails, events, or resources.

How We Use Your Information

We use your personal data to:

  • Communicate about our work, events, and resources.
  • Facilitate event registration and participation.
  • Respond to inquiries and provide support.
  • Send newsletters and updates (with your consent, where required).
  • Improve our website and services through analytics.

Legal Basis for Processing

We process your personal data under the following lawful bases:

  • Consent: Where you have given clear permission (e.g. subscribing to newsletters).
  • Legitimate Interests: To support our mission, including communicating with healthcare professionals, partners, and stakeholders, provided your rights are not overridden.
  • Contractual Necessity: Where processing is required to deliver services you have requested (e.g. event registration).
  • Legal Obligation: Where we are required to comply with legal or regulatory requirements.

Cookies

Cookies are small text files stored on your device to improve your website experience.

We use:

  • Essential Cookies: Necessary for the website to function properly.
  • Analytics Cookies: To analyse how visitors use the site and improve functionality.
  • Third-Party Cookies: For embedded content (e.g., YouTube, LinkedIn).

Managing Cookies:

You can control cookies via your browser settings. Disabling some cookies may affect site functionality. For more details, see our Cookie Policy.

Sharing Your Information

We do not sell or rent your personal data. However, we may share it with:

  • Service Providers: Trusted partners who assist in delivering our services or events.
  • Legal Authorities: If required for compliance with the law.

International Data Transfers

As a global organisation, we may transfer personal data to countries outside the UK. We ensure adequate safeguards are in place to protect your information.

These safeguards may include the use of Standard Contractual Clauses approved by the UK or transfers to countries deemed to provide an adequate level of data protection.

Your Rights

You have the right to:

  • Access: Request details of your personal data.
  • Rectification: Correct inaccurate or incomplete information.
  • Erasure: Request deletion of your data where applicable.
  • Restriction: Limit the processing of your data.
  • Objection: Opt-out of certain processing, including direct marketing.
  • Data Portability: Receive your data in a portable format.

To exercise your rights, contact us at info@cml-foundation.org

You also have the right to lodge a complaint with the UK Information Commissioner’s Office (ICO) at www.ico.org.uk if you believe your data has been handled improperly.

Children’s Data

Our website and services are not directed at children under the age of 16, and we do not knowingly collect personal data from children. If we become aware that we have collected such data, we will take steps to delete it promptly.

Data Retention

We retain your data only as long as necessary for the purposes outlined above or to comply with legal obligations.

Data Security

We implement appropriate measures to safeguard your data against unauthorized access, loss, or misuse.

Third-Party Services

Our website may include embedded content from third-party providers such as YouTube. These providers manage their cookies and data independently. Please review their privacy policies for more details.

Updates to This Policy

We may update this policy periodically. Changes will be posted here, and significant updates may be communicated via email.

Contact Us

For questions or concerns, contact us at info@cml-foundation.org